Dementia Awareness Week – a personal view

This post is dedicated to the memory of my Mum,  who died five years ago this week, on 15th May 2008.

The Alzheimer's Society's promo message

The Alzheimer’s Society’s promo message

Following closely on the current Mental Health Awareness Week is another aimed at raising awareness of a condition that affects many. Starting tomorrow, 19th May, it is Dementia Awareness Week, which is the main awareness-raising campaign run by the Alzheimer’s Society. The theme for this year’s campaign is talking, and there will be activities and events across England, Wales and Northern Ireland. The Society’s hope is that people will join the conversation about dementia this week, as the longer we all live the more of us will be affected by dementia – either ourselves or in a loved one. It is therefore important that we all know more about the condition, so that we can recognise the signs and will know how to cope if a loved one is diagnosed with dementia in any of its forms. In the Society’s words ‘The more we know about dementia, the more prepared we’ll be to face it.’

Mum, Dad, my sister, a cousin (top) and me, c.1960 I think.

Mum, Dad, my sister, a cousin (top) and me, c.1960 I think.

As you’ve probably guessed, I have first hand experience of a loved one with dementia. Mum lived an independent life for many years but there came that awful time when we realised that she needed round the clock support, the kind that can only be given in a nursing home. The one we found was a good one and they looked after Mum very well, even when she was shouting that they were trying to murder her when they put her in the hoist to get her out of bed! But in her last year her decline from dementia was noticeable – she still recognised my sister and me when we visited her, and could hold a perfectly sensible conversation for quite a while. But over time she became less able to converse, and the standard symptoms of memory loss began to show. She was taken into hospital as she wasn’t feeding well, and they told us that there was nothing they could really do for her. In effect, her dementia had affected her brain’s working so much that it wasn’t telling her body how to function – it had ‘forgotten’ how to eat and drink, so Mum had to be given this via a drip. Within a week of being discharged back to the nursing home she slipped peacefully away.

I’m telling you this partly, I suspect, because it helps me to set it down – especially this close to the anniversary – but because I know what the Alzheimer’s Society means when it talks about how the illness can affect others, not just the sufferer. It isn’t a preventable disease in the sense that medicine will stop it taking hold, but there are ways to live with it and enjoy a satisfying life. But you need to be ready, and you need to be aware. That’s why I’m supporting Dementia Awareness Week, and hope that you will too.

If you want to find out more, the Alzheimer’s Society’s dedicated page has all that you need to know about the week. It also has links to some very helpful literature for downloading  – I particularly recommend  the booklet Five Things You Should Know About Dementia. They also tell you about the various ways you can get involved, either by organising or taking part in events or by joining the conversation – for those of you on Twitter, use the #TalkDementia hashtag to see what people are saying.

And it wouldn’t be one of my Dates To Note pieces if I didn’t give you the link to the NHS website for more information.

If you know someone you fear may be suffering but has not yet been diagnosed, this would be a good time to follow up on the advice I’ve linked you to. It’s no coincidence that the news has carried the story this week that only about 45% of sufferers are diagnosed and treated appropriately, and that even the Government has decided to do something about it.

Be aware. Get involved. Please.

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21 thoughts on “Dementia Awareness Week – a personal view

  1. Clive, so sorry about the loss of your mum, as well as her struggle with this disease. My husband’s grandmother, whom I dearly loved, finished her life having this fight, remembering us sometimes, sometimes my husband but not me, and rarely our children…though she enjoyed them. I had even lived with Nan one summer before we married and adored her and her stories of her husband and mine, both of whom she’d describe as our “boyfriends.” Some of what she lost as she fought Alzheimers were the engaging stories she told..it really is an unkind disease. Thanks for reminding everyone and bringing awareness about it. Jo

    Liked by 1 person

    • Thanks Jo. As you’ve seen, it really is a terrible illness and affects so many people. I think we all need to be more aware of it, particularly in knowing what to look out for as warning signs.

      Liked by 1 person

  2. It is quite heartbreaking…more so when it’s someone you love & knew when they didn’t have the disease.
    I used to treat a group of patients with this disease, and although I never knew them before they were affected, it was still quite sad because they used to be strong, vibrant people.
    jodie
    http://www.jtouchofstyle.com

    Liked by 1 person

  3. Clive thanks for writing so knowledgeably and compassionately about dementia and Alzheimers disease. It is always better to discuss a problem. I think in the case of this particular disease most people tend toward denial.

    Liked by 1 person

  4. Reblogged this on Take It Easy and commented:

    In reblogging Ella’s post yesterday, about Mental Health Awareness Week, I reminded myself that in parallel it is also Dementia Awareness Week. Clearly, the two are closely related, and instead of writing something new for it I thought I would share again the very personal post I wrote in 2013. Those five years have now become eight, but nothing else has changed. My memories are as strong as they ever were but sadly, if Mum had still been with us today, hers wouldn’t have been. Dementia is terrible, both for the individual and their loved ones, and it affects so many. I hope you can take a moment to follow the links – they still work! – and find out more.

    Like

  5. A great post for Dementia awareness Clive. I will post something for Dementia awareness week today. I have worked with people with dementia and although challenging it was very rewarding, especially to get a smile and flicker of their old selves. it takes patience at times to understand many mental illnesses and diseases. Thank you Clive..

    Gem x 🙂

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  6. Thanks for sharing Clive, so sorry to read about your Mum, it’s a curse so many people suffer, my lovely ex neighbour is a sufferer and it breaks my heart when I visit her. From a vibrant business woman to someone living inside herself is the only way I can describe it. Just a great sadness see her like this.

    Like

    • Thanks for your kind words Merilies, I appreciate your taking the trouble to read and reply. You’ll know what it’s like from seeing your neighbour, she sounds very similar to the way it affected Mum.

      Like

    • Thanks Ruth, amazing coincidence of timing made for a more personal Date To Note than usual! I hope it never happens to your parents or to you, it’s a sad way to be.

      Like

  7. Thank You So Much for this. Your story here hits close to home and your passionate and heartfelt love for your Mum is consoling.

    The booklet you mention universally is indeed a wonderful resource for loved ones. Of all of the diseases and illnesses that we deal with, I think dementia and Alzheimer’s can be so misunderstood at times and so hard for family members and close friends to comprehend. Any awareness is noteworthy.

    Like

    • Thanks for your kind words, I really do appreciate your support. I think a lot of people are afraid to think and talk about illnesses like dementia, they need to be brought out more into the open so people get the help they need.

      Like

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